Saturday, April 29, 2017

Sharing my story on the stage

Well, I said I'd try to post more regularly, but as those of you who have chronic illness know, promising something and actually not being capable of fulfillment. For those of you who are healthy, please know that we aren't being flakey or rude or bad friends, I promise we want to be there.

If you haven't heard, I co-wrote a play about my life as it declined into (very) neurological Lyme and my best friend who chose to help me fight for my life. The thing is that we are both theatre artists so of course the natural outlet to tell our story is on the stage. As I am sure many of you know, words aren't often enough to truly explain our experience. Show and Tell.

Six years since my diagnosis (dx). And I will get back to that later, maybe tomorrow.

Five years in treatment (tx).

Now, we are in England. I can't even tell you how much the sea-level and sea air helps me. We are here for a few reasons.

  • I like to breathe- I breathe better here than anywhere. No more air hunger is a blessing more than... I don't even know...
  • Our director lives here
  • Our show titled, "How to Walk Through Hell" is debuting at the Brighton Fringe Festival May 22nd- 28th
  • The woman playing me/the patient is also from the area
  • After 3 1/2 years of treatment (I was so so sick) I have been put on a new protocol and I need a place that doesn't have the heat and insane humidity to really try to get to the point where I have fewer flares from treatment.
  • May is Lyme awareness month
  • My creative partner/care giver/best friend is also in the show as the caregiver
I am sure I am forgetting something(s), but I know you'll understand the memory problems. 

The show's Twitter handle is @H2WTH, please take a look. Though its brand new within the hour, so please forgive the lack of tweets. It will be very active in the coming days and weeks. 

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