For Lymies and other chronically ill persons, it can be a beyond full time job just saying alive. And that is without considering fighting for food stamps, SSDI, SSI, Medicaid, Medicare, Rx coverage, and all the people who claim we owe them money without sending accurate statements/proof.
Tomorrow, I was supposed to travel many hours away for an LLMD appointment. However, due to many separate, but equally frustrating events, I was unable to obtain transportation for the entire way. I was also unable to get in touch with my doctor, whose nurse is out for the day. I had to get an answer to the pilot as to whether he would have to spend extra time and money to take me the second leg and then get me from the airfield to the doctor and back all in one day. Now for those of you with Lyme, especially late late stage, you can probably guess what I will say next. After attempting to get these questions answered and then find solutions to the arising of more problems, I was beginning to stress about whether or not I would even be able to do the travel and be coherent enough to communicate with my doctor.
Thankfully, after spending from 8 am to 2 pm trying to get permission to have an over the phone appointment, I got an answer that, yes that is fine.
AND, I am getting a weird claim from a company claiming that the US government has okay'ed them to bill me for 500 bucks. Claiming it has to do with back pay on my SSI. So after many (checking my phone...8 to deal with this issue and 7 calls and 3 emails to figure out the doctor appointment ) calls between this company and the local SS field office, I have been reassured by the office, that without a written bill to me and an official appeal to SSI, they cannot legally make me pay. I know this is going to come up again, but at least I know where I stand legally speaking.
All while doing the normal things like showering for the first time in days, taking meds (eating and drinking painfully required) and getting my Monday injection. I also somehow managed to walk to the library to get some books on cd to put on my ipod for the flight/drive tomorrow if it was to occur. It is insanely hot outside.
At least I know I don't HAVE to do anything until 20 min prior to my appointment over the phone(!) tomorrow afternoon. Now if I could only get my amygdala to stop freaking out and telling me that I am about to die, I could relax enough to make lunch and take those pills.
And with that, I leave you with the hope that someday soon, I can hop on here and write about how much better I am doing. But in the meantime, I will rely on my favorite Doctor and the Ponds to help me calm down.