Saturday, August 31, 2013

21 Day Fundraiser ($15 Awareness tees)

Real quick post. (But important.)

With the recent CDC announcement that their number of Lyme patients is underestimated by over 10 fold (putting the actual numbers over 300,000 in the US alone), I thought it might be nice to show people how common it truly is. Lymies, please consider declaring yourself the warrior you are! All proceeds go to help with my treatment. I will continue to do fundraisers after my treatment is done to help others cover the extreme costs of fighting for out lives against this horrible disease. 

Each of these is only $15. In order for me to get any money, 50 of each must be ordered in the next three weeks in order for me to qualify for assistance. Please help out not only me, but many others by spreading awareness. Thanks! Links to order are above each pic. 


Design Image




Design Image

Thursday, August 22, 2013

Surgery and recovery

About 7 weeks ago I had surgery to take out my gallbladder and to see if my appendix needed removed as well. Only the gb came out and I was told that a large amount of my abdominal pain is due to congestion of blood in my abdomen. For whatever reason, (most likely of which is blood and Bb filled cysts bursting), the blood just sits there and burns like someone put hot coals between my organs. When watching medical shows on TV and they show surgery there is always blood and I never thought, "blood must not be between the organs but simply in the veins, vessels, and capillaries." That is wrong. The surgery was supposed to help with the scream inducing pain that often caused me to imagine someone had sent a spear piercing through my abdomen. To a certain extent it did, but the widely located pain is still very much present, just the gb pain is gone. My LLMD said that I should expect recovery to take about 4 times as long as they (the surgeon and PCP) expected. They said one week for pain, two weeks before sweating (Midwest summers anyone?) and 6 before I was to lift more than 20 lbs. It was 3 weeks before I could sit up on my own. I spend a good part of that time in bed and when I needed out, sort of rolling and hoping my feet would land first. Fun. I also moved apartments. So packing and unpacking without breaking a sweat or lifting more than 20 lbs. Yeah, right.

I did my best. I had to move after all. I am not sure if that helped or hindered my recovery. Either way, I am still hurting. I feel like someone has put some sort of hook behind my abdominal wall and is just pulling outward. I still can't eat well. By well I mean more than one solid meal a day and even that is pushing it. It is surreal that I haven't updated in almost 2 months. I can barely recollect the time that has passed. I know most was horrible and I have lost weight. But...

I am up-to-date on my treatment protocol now. Still not killing the Lyme. Hitting the Babs, bart, and cysts first. It is hell. I stop breathing randomly. At last count 27 doses of various medicines a day, plus injections 3 times a week. Oy vey. Most of which require specific food to be absorbed or to be kept down. Even water is hard to swallow. I am doing my best to sleep, but failing miserably. I am just barely keeping out of "severely dehydrated" range. I don't feel hunger anymore. I just constantly have a pain. I hurts when eating, after eating and long after eating. 

So in summery, this sucks. I really didn't mean any of the above to appear or feel rant-like in the least. It is merely an accurate depiction of my status quo.