1) I know someone who wants to/can help...
Whether this person is a medical professional or not, if I don't expressively seek your assistance in finding a doctor, keep your knowledge to yourself. I know who the best people are. I have been doing research and treatment for almost a decade now. I trust myself and the doctors and treatments I choose.
2) Only use natural cures, the rest are poison.
Well, the disease is far worse than the side effects of the meds. I'll worry about the potential poisoning after I am no longer actively (albeit, slowly) dying from Lyme & Co's. Not that it's your business, but I do use natural meds when my doctor clears them as safe with my existing treatment.
3) You should try this ... 'cause it helps my aunt's cousin's sister-in-law...
Because she is me...? Do I really have to go into how dumb this is. EVERY CASE OF LYME IS DIFFERENT.
4) I am sure your doctor won't approve ... *cure*... because your current treatment supports big pharma.
Sometimes, (politics and business aside), big pharma creates things that save us. Shocking, I know!
5) You seem so much better though...
"Seem" being the operative word. Yes, you see me when I am at the pinnacle of my health. If I weren't feeling well I'd still be at home resting/fasting/medicating/managing pain et al. That does not mean that what you see is my majority. In fact, it's a sliver. When I can go and do. believe me, I go and do!
6) Talking about your disease makes people uncomfortable...
Sorry, you asked what I've been up to. As I said in #5, resting/fasting/medicating/managing pain, A.K.A. treatment, dominates my daily life. If I listen to you talk about how much you hate your job or other changeable things, I get uncomfortable. I do everything in my power all day, every day to change my circumstances. I don't understand why you don't. Yes, it seems like I don't care. I am fully aware of that. But so much of what people talk about is complaints about small stuff. You know? That stuff we aren't supposed to sweat. If you are bothered enough by your circumstances, change them. I am treating to change mine.
7) Don't dwell on your illness, it will become your identity.
Great! I am a Lymie! And my fight makes me a Warrior. Not a victim. If thinking about my illness makes me a victim, how on Earth am I supposed to treat and prevail?! I know my opponent well, and I will win.
8) If you cannot listen to my story, you will not earn my friendship.
Life is hard. We are all fighting battles. The reason I talk about mine so much is that it pretty much consumes everything I do. I have to ration energy in strict manner. That means I have little time for anything else. If I make time for you, I care. I do. I will listen to your story. As long as you are seeking health and wellness physically and emotionally, I will support you. I am working hard on those aspects of my life as well, hence the treatment talk. Unfortunately for me, my backstory and current circumstances are dictated by LD, like why I have such a weird food schedule and such. There isn't much else going on. I know it gets old. I know progress is slow, but if I am sharing my progress with you, you are important to me.
9) Please don't use my illness to introduce me to your religion.
Just don't. If we are friends and of different theologies, sure we can have a conversation or many. As friends. Your god/faith might be great for you. That doesn't mean I will be healed for changing my personal faith/belief system. If you respect me, you'll respect my choice of/from religion.
10) This is really, really, really petty of me, but in the name of sanity, I will NOT listen to your advice if you insist on calling it Lyme'S.
There is no possessive. It is named after a town in Connecticut where if was first identified. Lyme, CT. Not Lymes. Not Lyme's. This is especially true if you have any sort of medical training. I know you all only get like 30 min of education on Lyme Disease in med school. I know. I know you spent a ton of money to have those letters after your name. But if you don't know the name of the disease, kindly shut up. My degree isn't in medicine, but I am an expert of my personal case. I literally spent years studying like my life depended on it. I am still here. That is your evidence that I know what I am talking about. So again, unless you are MY LLMD, don't offer your opinion on what I should do for treatment.
P.S. LLMD is Lyme Literate Medical Doctor
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